RESOURCES California
Emerging Infections Program (CEIP)
1611 Telegraph Avenue,Suite 1200
Oakland CA 94612
Telephone-510-451-1344
http://www.ceip.us
The California Department of Public Health (CDPH) - Infectious
Disease Branch
Creutzfeldt-Jakob
Disease Foundation
For resources for the support of families and patients with
CJD
National
Prion Disease Pathology Surveillance Center (NPDPSC)
Case Western Reserve University
Cleveland, Ohio
Telephone – (216) 368-0587
•
Arrange autopsy for suspected CJD through their national autopsy
network
• Determine the precise type of prion disease from pathologic
studies of brain tissue
• Provide CSF testing for the 14-3-3 prion protein and
tau protein
• Provide DNA testing on blood and brain tissue
University
of California San Francisco (UCSF) Memory and Aging Center (MAC)
UCSF Memory and Aging Center (MAC)
Telephone - (415) 476-6880
•
Only center currently conducting treatment trials
• Specifically interested in researching and clinically
evaluating patients with a rapidly progressive dementia, especially
TSEs
• To refer or discuss a case with them, call their Rapidly
Progressive Dementia Unit at (415) 476-0670
Centers
for Disease Control and Prevention (CDC)
Centers for Disease Control and Prevention – Background
on Prion Diseases
http://www.cdc.gov/ncidod/dvrd/prions/index.htm
Centers
for Disease Control and Prevention - Infection Control Measures
http://www.cdc.gov/ncidod/dvrd/cjd/qa_cjd_infection_control.htm
WHO
- Infection Control Guidelines for Transmissible Spongiform
Encephalopathies
http://www.who.int/csr/resources/publications/bse/whocdscsraph2003.pdf
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